HDFS 208 Children and Families with Special Needs Sp 21(1) PDF

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Download HDFS 208 Children and Families with Special Needs Sp 21(1) PDF

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HDFS 208 Children and Families with Special Needs – Syllabus Spring 2021 Adapted for hybrid online semester Instructor

Jan Brooks [email protected] 217 333-2102 office hours by appointment, via Zoom

office 214 CDL

Teaching Assistant

LaKisha David [email protected] office hours by appointment, via zoom

Course Description: HDFS 208 provides a multi-disciplinary, developmental approach to the study of issues related to exceptional children and their families. You will explore social, emotional, and economic aspects of exceptionality for children and their families; examine processes of identification, intervention, and integration of children who deviate significantly from developmental norms. The course is designed for students studying child development, early childhood education, special education, social work, nursing, pediatric medicine and therapies, advocacy, and other disciplines involved with children who have special needs and their families. HDFS 208 is highly recommended for students preparing for internships and careers as Child Life Specialists. There are no exams in this course. Attendance/participation are very important, both for your grade, and to maximize learning concepts important for your career! One weekly class meeting (Tuesdays) will be synchronous on Zoom. Other activities will be asynchronous, accessed through Compass 2g. You must attend the weekly lecture/discussion class on Zoom to get full attendance points. Please participate! If you must miss a discussion or are unable to log in to the Zoom meeting, you may contact Jan and LaKisha within one week of the missed class to request an opportunity to make up the missing work. It is much more productive and exciting to participate in the Zoom discussion class than to do extra writing on your own for the make-up points. The social support gained from participating with the class cohort is very valuable. COVID-19 and Other Extenuating Circumstances: Flexibility, compassion, and open communication are critical to fostering mental health and student success. If you need an extension or other accommodation, please email the instructor and the TA at least 24 hours before the due date, with an explanation of what you need to be successful. Please use respectful and inclusive Zoom etiquette. The effectiveness of this course is dependent upon the creation of an encouraging and safe classroom environment. Exclusionary, offensive or harmful speech (such as racism, sexism, homophobia, transphobia, etc.) will not be tolerated and in some cases subject to University harassment procedures. We are all responsible for creating a positive and safe environment that allows all students equal respect and comfort. We expect each of you to help establish and maintain and environment where you and your peers can contribute without fear of ridicule or intolerant or offensive language. All discussion assignments must be completed and uploaded on Compass by the due dates. If an assignment is turned in past the due date, you may receive 2 points off for each day it is late at your instructor’s discretion. All assignments will consist of points for completing the assignment as well as the quality (e.g., grammar) of the written work and your thoughtful responses in consonance with the course content. Show us your best writing!

Calendar Date

Topics

Read

Introduction and course overview, on Zoom Gargiulo chapter 1 Orso, Lydia, “What It Is Like to Have a Disability.” (high school student writing) on compass. 1/26

Dickson (Brooks) J. (2000). “Growing with Inclusion: A Personal Reflection.” Early Childhood Education Journal, Vol. 27. Mithers, C. (2012). “Are School Nurses Disappearing?” CNN Health (writing assignment due 2/4) Wofford, Portia. (2019). “School Nurse Shortage Named a National Crisis.” nurse.org. https://nurse.org/articles/school-nurse-shortage/

1/28

Disability, Inclusion, Bias, Cultural Diversity, Black Disability Studies, Professionalism

Dunhamn, J, Harris, J., Jarrett, S., Moore, L., Nishida A., Price, M., Robinson, B., Schalk, S., (2015). “Developing and Reflecting on a Black Disability Studies Pedagogy: Work from the National Black Coalition.” Disability Studies Quarterly, Vol, 35, No 2 (2015). https://dsq-sds.org/article/view/4637/3933 Benefits of Inclusive Education, Kids Together, Inc. Check website! http://www.kidstogether.org/inclusion/benefitsofinclusion.htm#sceic Assignment: Submit a reflection and commitment to yourself on inclusion and anti-bias approach, due 2/2. Please submit all assignment on Compass.

2/2

“At Risk” and “Inclusion” Policy, History of Inclusion, on Zoom

Gargiulo chapter 2

Check disabledinaction.org website, read excerpt on organization founder Calvin Peterson from the website of the National Black Disability Coalition (on compass) http://www.blackdisability.org/node?page=3 Jarrett, R. L. (2006). “Successful parenting in high-risk neighborhoods.” CYC-Online, e-journal of the International Child and Youth Care Network. Issue 84, January 2006. https://www.cyc-net.org/cyc-online/cycol-0106-jarrett.html

drug

Solis, J. M., Shadur, J. M., Burns, A. R., & Hussong, A. M. (2012). “Strategic Teaching, Understanding the diverse needs of children whose parents abuse substances.” Current abuse reviews, 5(2), 135–147. https://doi.org/10.2174/1874473711205020135

Assignment due: Reflection and commitment to yourself on Inclusion and anti-bias approach. (10 points) Chapter 1 Reading Quiz due. (5 points)

View documentary film: Crip Camp: A Disability Revolution. 2020 Netflix 1 h 48 m. “A groundbreaking summer camp galvanizes a group of teens with disabilities to help build a movement, forging a new path toward greater equality.” We do not have free access to this film at this time. Please watch it if you possibly can, on Netflix. If you absolutely cannot access this film, watch the trailers and the film review by Justin Chang on You Tube.

2/4

Assignment due: 1-page reaction to “Are School Nurses Disappearing?” article. (25 points)

2/9

Cultural, Language Diversity and English Language Learners, on Zoom

Gargiulo chapter 3

Chen, J. J. and Shore, S. H. (2011). “Strategic Teaching, Fostering Communication Skills in Diverse Young Learners. Young Children, March 2011, NAEYC. “Childhood Exposure to Violence,” HealthyChildren.org. 2016 American Academy of Pediatrics. (for writing assignment due on 2/16) Chapter 2 Reading Quiz due. (5 points)

2/11

Learning Disabilities, Intellectual Disabilities

Gargiulo 6, 7

Have Children with Special Needs spiral bound book at hand. Look up learning disabilities and intellectual disabilities. Learn to check this book for each disability that we cover, and pay special attention to the middle column on other disabilities that the symptoms could indicate. This course is meant to teach you to problem-solve and think critically about all possibilities, though not to diagnose disabilities, or jump to conclusions on the cause. Please browse the National Down Syndrome Society website. https://www.ndss.org/ Chapter3 Reading Quiz due. (5 points)

2/16 Children and PTSD, Exposure to War, Terrorism, on Zoom Complex Trauma Treatment Network of the National Child Traumatic Stress Network. (2016). Complex

trauma: In Urban African-American Children, Youth, and Families. Los Angeles, CA, & Durham, NC: National Center for Child Traumatic Stress. https://www.nctsn.org/resources/complextrauma-urban-african-american-children-youth-and-families

Pizzolongo, P. and Hunter, A. (2011). “I Am Safe and Secure, Promoting Resilience in Young Children,” Young Children, March 2011, NAEYC. Myers-Walls, J. (2003). “When War Is in the News,” Purdue Extension Knowledge to Go. Assignment due: 1-page reaction to “Childhood Exposure to Violence” article. (25 points) 2/18

Attention Deficit Disorders

Gargiulo 8

Ballanco, G. A., M.D. (2012). “To Medicate or Not to Medicate.” Website of the Louisiana Children’s Research Center for Development and Learning, August, 2012. (on Compass) Oken-Wright, P. (1992). “From Tug of War to Let’s Make a Deal: The Teacher’s Role.” Young Children, Nov. 1992. NAEYC. How would you respond? paper #1 assignment prompt in this compass folder. Due 3/2. Chapter 6 and Chapter 7 Reading Quizzes due. (5 points each)

2/23

Behavior and emotional disorders, on Zoom

Gargiulo 9

Cartledge, G., Kea, C., and Simmons-Reed, E. (2002). “Serving Culturally Diverse Children with Serious Emotional Disturbance and Their Families.” Journal of Child and Family Studies, Vol. 11, No. 1, March 2002, pp. 113-126. https://link.springer.com/article/10.1023/A:1014775813711 Chapter 8 Reading Quiz due. (5 points)

2/25

Mental Illness Watch the two 20-minute TED Talk links on mental illness. Upload a paragraph response or comments on these TED Talks to confirm your work (attendance points) TED Talk Dr. Santa Ono. “Tracking the Mental Health Crisis in Our Youth. “ https://www.youtube.com/watch?v=_xotcgKJH6A TED Talk Dr. Jeffrey Lieberman. “Imagine There Was No Stigma to Mental Illness.” https://www.youtube.com/watch?v=WrbTbB9tTtA Assignment: Reflection on these two TED Talks, due 3/4.

3/2

Autism Spectrum Disorders, on Zoom

Gargiulo 10

Brown, Lydia. (2020) “Identity-First Language.” Autistic Self Advocacy Network website. https://autisticadvocacy.org/about-asan/identity-first-language/

Williams, Janet (2020). “Making progress toward the dream: Autism in the black community.” Autism Speaks website, Jan 10, 2020. https://www.autismspeaks.org/blog/making-progress-toward-dream-autism-blackcommunity Furfaro, Hannah. (2017). “Latino families face barriers on path to autism diagnosis.” The Spectrum website. https://www.spectrumnews.org/news/latino-families-face-barriers-pathautism-diagnosis/ Deweerdt, Sarah. (2012). “Culture: Diverse Diagnostics.” Spectrum/Autism Research News. https://www.spectrumnews.org/news/culture-diverse-diagnostics/ Assignment Due: How Would You Respond #1. Upload on compass, 3 pages typed, double spaced. Use ideas, philosophy from this class… resources, books, lectures, no citations needed, be thorough. (50 points) Chapter 9 Reading Quiz due. (5 points)

3/4

Temple Grandin Film McCollum, S., Illustrated by Masa. (2016). “A New Frame of Mind. What autistic students wish you knew about who they are and how they learn.” Teaching Tolerance, Issue 53, Summer 2016, pp. 55 – 58. https://www.tolerance.org/magazine/summer-2016/a-new-frame-of-mind Willis, C. (2009). “Young Children with Autism Spectrum Disorder: Strategies that Work.” Young Children, Jan. 2009, pp. 81 – 89. NAEYC. (pdf on Compass) How would you respond? paper #2 assignment prompt in this compass folder. Due 3/18. Final poster presentation book preferences organized this week! Upload your book pref info form on Compass (assignment 0 points) Upload your paragraph reflection on the TED Talks on Mental Illness by today. (10 points) Begin reading The Spirit Catches You and You Fall Down or The First 1000 Days. Paper due 4/20.

3/9

Sensory Integration Disorder, on Zoom

Ault, K. (2017). “Service Dog vs Therapy Dog vs Emotional Support Dogs.” The Canine Journal, July 10, 2017. https://www.caninejournal.com/service-dog-vs-therapy-dog-vs-emotionalsupport-dogs/

Invisible Disabilities Association online pamphlet: “Service Animals Assist People with Various Disabilities.” https://invisibledisabilities.org/publications/serviceanimals/service-animal/

3/11 Vision and Hearing Impairments

Gargiulo 12,13

Simmons, Noreen. (2017). “Early Intervention with Linguistically and Culturally Diverse Deaf and Hard-of-Hearing Children.” Posted on Oxford University Press Journals, 2020. Links for further reading included. http://www.raisingandeducatingdeafchildren.org/2017/04/03/earlyintervention-with-linguistically-and-culturally-diverse-deaf-and-hard-of-hearing-children/ Yockelson, Suzanne, (1996). “Including a Child Who Has a Visual Impairment.” Scholastic Early Childhood Today. (pdf on compass) Chapter 10 Reading Quiz due. (5 points)

3/16

Occupational Therapy, Guest Panel on Zoom – work in the field and applying to grad programs. Jackie Mats’ela, Nikki Gross, Laura Czopek. American Occupational Therapy Association’s Guide to Acknowledging the Impact of Discrimination, Stigma, and Implicit Bias on Provision of Services. https://www.aota.org/ (pdf on compass)

3/18 Speech and Language Disorders

Gargiulo 11

Hannah’s Story, AAC languagelab blog post by Hannah Foley, former HDFS 208 student https://aaclanguagelab.com/articles/hannahs_story?mode=view Briody, J. and MGarry, K., (2005). “Using Social Stories to Ease Children’s Transitions.” Young Children, September 2005. NAEYC. Shaul, J. LCSW. “Helping teen boys with high functioning autism to relate to girls: Card game activity and social skills teaching materials.” On the website for Autism Teaching Strategies. Includes printable materials, link to video, suggestion to alter the game for people on the spectrum who are gay. Resource: ECHO Journal of the National Black Association for Speech-Language and Hearing Vol 11- no1.pdf. Summer 2016. This volume contains several helpful research articles on communication disorders within and among social, cultural, and linguistically diverse populations – emphasis on those who are underserved. (pdf on compass). Also check the website of the National Black Association for Speech-Language and Hearing. https://www.nbaslh.org/

Saint Louis, C. (2015). “Coaxing Children With Selective Mutism to Find Their Voices.”, The New York Times, Aug, 17, 2015. https://www.nytimes.com/2015/08/18/health/coaxing-children-withselective-mutism-to-find-their-voices.html Assignment Due: Please upload on compass, 3 pages typed, double spaced, How would you respond paper? #2. Use class resources, books, lectures, no citations needed, be thorough. (50 points) Chapters 12 and 13 Reading Quizzes due. (5 points each)

3/23

Children, Chronic Illnesses and Covid, International Public Health, guest speaker, on Zoom Guest speaker Dr. Jawaya Shea, Red Cross War Memorial Children’s Hospital, Cape Town, South Africa, on COVID in culturally diverse pediatric immunocompromised patients. Kelly Tu interview, UIUC News Bureau, education editor Sharita Forrest, “How can parents help children cope with COVID-19 disruptions?” Mar.23, 2020. TED Talk Kate Abney, “More than just a handful of pills.” (exploring narratives of children with tuberculosis in South Africa) https://www.youtube.com/watch?v=1sPq1jVypDs

3/25

Assessment/Intervention/Coordination of Services/Family Systems Theory. Gargiulo

chapters 4, 5 Moon, E., Test Child, Real Child, Exceptional Parent, June, 1992. (pdf on Compass) Dillard, Coshandra. (2019). Black Minds Matter: Interrupting school practices that disregard the mental health of Black youth. Teaching Tolerance. Issue 63, Fall 2019. https://www.tolerance.org/magazine/fall-2019/black-minds-matter Tejero Hughes, M., Martinez Valle-Riestra, D., and Arguelles, M. E. (2008). “The Voices of Latino Families Raising Children With Special Needs.” Journal of Latinos and Education, 7(3), 241-257, Taylor & Francis Group, LLC. (pdf on compass) Chapter 11 Reading Quiz due. (5 points)

3/30 Physical and Health Disabilities, Disparities, Asthma, on Zoom Discussion on impacts of social disparities in the US, effects on health/disabilities, and programs designed to change parental and family health behaviors, as well as advocacy for systemic change. Guest: Dr. Margarita Teran or her students. Boyd-Barrett, C. (2020). “Kids Who Rely On Ventilators Can’t Get Enough Supplies, Putting Their Lives At Risk.” The National Black Disability Coalition in partnership with Disability

Scoop. http://www.blackdisability.org/content/kids-who-rely-ventilators-can%E2%80%99t-getenough-supplies-putting-their-lives-risk Holsey, Chandra N., Collins, Pamela, and Zohran, Hatice. (2013) “Disparities in Asthma Care, Management, and Education Among Children With Asthma.” Clin Pulm Med. 2013 July ; 20(4): 172–177. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4999068/

4/1

Children who are Gifted and Talented

Gargiulo 15, article

McGee, C. D. and Hughes, C. E. (2011). “Identifying and Supporting Young Gifted Learners.” Young Children, July 2011. Pp. 100 – 105. NAEYC. National Association for Gifted Children Recursos Para los Padres de Familia. “Helping Your Gifted Child Succeed! Pdf in Spanish and English on compass. This and additional resources: https://www.nagc.org/resources-publications/resources-parents/recursos-para-los-padres-defamilia Kamenetz, Anya, )2015). “Who Are ‘The Gifted and Talented’ And What Do They Need?’ nprEd online, Sept. 28, 2015. Link embedded in lecture for this class. https://www.npr.org/sections/ed/2015/09/28/443193523/who-are-the-gifted-and-talentedand-what-do-they-need Assignment: Type in the fields indicated as you view the lecture, save, and upload on Compass by 4/8. (10 points) Chapters 4 and 5 Reading Quiz due. (5 points each)

4/6

Parent Perspective: The Real World of Adulthood, on Zoom. Guest speaker Jeanne Kramer. The Autism Program. Kantrowitz, B., and Scelfo, J., (2006). “What Happens When They Grow Up,” Newsweek, Nov. 06, 2006. https://www.newsweek.com/autism-what-happens-when-they-grow-107237 Samuels, Christina. (2019) “Special Education is Broken.” 10 Big Ideas website, Jan. 8, 2019.

4/8

Challenges with Transition to Adulthood for Youth with Special Needs

Gargiulo 14

View the film Benny and Joon Note caregiver’s challenge in letting his sister with disability gain independence. Complete the film assignment prompt for class attendance points and upload as an assignment by 4/15. Fazio, Marie (2019). “Why adults with developmental disabilities are waiting seven years, or longer, for programs they need to live on their own.” The Chicago Tribune. Dec. 03, 2019.

Bagenstos, Samuel R. "The Disability Cliff." Democracy 35 (2015): 55-67. https://democracyjournal.org/magazine/35/the-disability-cliff/

Chen, J. (2011). “Who Will Care for Dana?” Parade. April 3, 2011. https://parade.com/110577/joannechen/autisms-lost-generation/ Samuels, Christina. (2019) “Special Education is Broken.” 10 Big Ideas website, Jan. 8, 2019. Upload your Children Who Are Gifted/Talented power point with responses by today. Chapter 15 Reading Quiz due. (5 points)

4/13

University day off classes – no Zoom class today.

Intersections and Disability: Supporting Children and Adolescents Who Identify as LGBTQA+ Check out resources on the PFLAG website and links to publications in Spanish and English languages: https://pflag.org/publications 4/15

Dower, Erin. “Tips for Understanding and Raising a Transgender Child.” Resource from familyeducation.com, with additional links. https://www.familyeducation.com/life/gender-differences/6-tips-understanding-raising-transgenderchild Maurer, Luca, MS CFLE, ACSE, (2008). “Ten Tips for Parents of a Gay, Lesbian, Bisexual, or Transgender Child.” Advocates for Youth website. https://advocatesforyouth.org/media/parents-33/ George, R. and Stokes, M. A. (2018). “Sexual Orientation in Autism Spectrum Disorder.” Autism Research 11: 133-141, 2018. https://www.researchgate.net/publication/321188254_Sexual_Orientation_in_Autism_Spectrum_Disord er Gidden, D. et all (2016). “Gender Dysphoria and Autism Spectrum Disorder: A Systematic Review of the Literature.” Sexual Medicine Review. 2016;4:3e14. Copyright _ 2016, International Society for

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